♥♥♥♥♥ Informative,February 5, 2013, Michael
After our geneticist told us that he believed that our daughter may have Loeys Dietz syndrome we went home to find out all we could. There are a few informative websites, however we really wanted to know how this may affect our family in our day to day life. We went to Amazon and did a search to see if anything would come up and to our surprise this book was there. Even though the affects of this syndrome, to some regard, may vary from one person to another we took great comfort in reading a book about this close family from the midwest and how with each difficulty they became stronger and closer because of it. After reading this book the prospect of Loeys Dietz syndrome didn't look as hopeless. This book is inspirational, tear jerking and empowering. I found myself crying and even laughing at times. It is very well written and an easy read. I highly recommend this book to anyone that is facing any rare connective tissue syndrome such as marfan and ehlers- danlos, etc... as well.
May God continue to bless the Jurgens family!